Rare Disease Day

There was a program on February 28 to recognize Rare Disease Day.  We have a number of people with rare diseases in our district, so I found this event very interesting. The most recent case is a young woman who has a rare form of cancer. There are 30 people, worldwide, with this condition.

One of the speakers was from NORD, National Organization for Rare Disorders.  See rare diseases.org for more information.

I will be signing on to House File 2574, a bill that creates a rare disease advisory council.

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