There was a program on February 28 to recognize Rare Disease Day. We have a number of people with rare diseases in our district, so I found this event very interesting. The most recent case is a young woman who has a rare form of cancer. There are 30 people, worldwide, with this condition.
One of the speakers was from NORD, National Organization for Rare Disorders. See rare diseases.org for more information.
I will be signing on to House File 2574, a bill that creates a rare disease advisory council.